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Beyond the Diagnosis: The Dial-Up Brain: Understanding Executive Dysfunctional in Huntington's Disease
Paperback
Series: Beyond the Diagnosis
Health GeneralGenetic Conditions
Publisher: Independently Published
Published: Sep 3 2026
Pages: 234
Weight: 0.63
Height: 0.59 Width: 6.00 Depth: 9.00
Language: English
In Beyond the Diagnosis: The Dial-Up Brain, Melanie Evans combines understandable explanations of executive dysfunction with the real-life experiences of caring for her son, Greg, who lives with Juvenile Huntington's disease.
Using Greg's description of his own thinking-a dial-up brain-Melanie helps families understand the space between knowing and doing. Through everyday stories involving medications, appointments, household tasks, communication, safety, routines, and independence, she shows what executive dysfunction can actually look like outside the doctor's office.
More importantly, this book explores how families can respond with practical support while protecting dignity, choice, and participation.
Because sometimes the connection may be slow.
But the person is still there.
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