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Beyond the Diagnosis: Still Us - Loving Someone with Huntington's Disease: A Guide for Spouses and Partners
Paperback
Series: Beyond the Diagnosis
Publisher: Independently Published
Published: Aug 31 2026
Pages: 190
Weight: 0.52
Height: 0.48 Width: 6.00 Depth: 9.00
Language: English
Beyond the Diagnosis: Still Us - Loving Your Spouse Through Huntington's Disease is written for the husband, wife, or partner walking beside someone with HD while quietly becoming a caregiver along the way.
With warmth, faith, practical encouragement, and a willingness to talk about the things spouses do not always say out loud, Melanie Evans explores the complicated reality of loving someone through Huntington's disease.
Inside, she talks about the good-day trap, anger and apathy, changes in thinking and communication, sleep, intimacy, swallowing and mobility concerns, medical appointments, accepting help, financial worries, anticipatory grief, resentment and guilt, faith, laughter, making memories, and planning ahead without giving up.
This is not a book about being the perfect caregiver.
It is about remembering that you are still a spouse, too.
It is about seeing the person beyond the diagnosis while learning how to care for yourself, ask for help, set boundaries, grieve what has changed, and treasure what remains.
Because HD may change the way a marriage looks.
But love can change shape without disappearing.
There can still be laughter.
There can still be tenderness.
There can still be memories worth making.
There can still be love.
There can still be us.
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