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Het ReNU Syndroom: Wetenschappelijke Inzichten, Verhalen, Hoop en Praktische Ondersteuning voor Gezinnen en Professionals
Paperback
ISBN13: 9789083734200
Publisher: Mijnisbn
Published: Jul 1 2026
Pages: 290
Weight: 1.49
Height: 0.61 Width: 8.50 Depth: 11.00
Language: Dutch
Het ReNU Syndroom is één van de eerste uitgebreide boeken die volledig gewijd zijn aan het ReNU-syndroom, een zeldzame genetische neuroontwikkelingsstoornis die pas in 2024 werd ontdekt.
Door de nieuwste wetenschappelijke inzichten te combineren met de persoonlijke verhalen van gezinnen van over de hele wereld, biedt dit boek een unieke combinatie van kennis, herkenning en hoop. Het behandelt de vele uitdagingen die gepaard kunnen gaan met het ReNU-syndroom, waaronder ontwikkelingsachterstand, communicatieproblemen, voedings- en spijsverteringsproblemen, slaapproblemen, epilepsie, sensorische prikkelverwerking, mobiliteit en het dagelijks leven.
Maar dit boek gaat verder dan alleen de diagnose. Door de ervaringen van ouders, verzorgers en families centraal te stellen, laat het zien hoeveel kracht, veerkracht en unieke kwaliteiten deze kinderen bezitten. Hun verhalen bieden troost, begrip en herkenning aan gezinnen die zich soms alleen voelen op hun reis.
Het boek is geschreven door Yvonne Schimmel, grootmoeder van een kind met het ReNU-syndroom. Vanuit zowel persoonlijke betrokkenheid als een diep verlangen om meer bewustwording en begrip te creëren rondom deze nieuw ontdekte aandoening, bracht zij wetenschappelijk onderzoek, praktische inzichten en ouderverhalen samen in één waardevol naslagwerk.
Of u nu ouder, familielid, therapeut, leerkracht, zorgverlener of onderzoeker bent, The ReNU Syndrome biedt een diepgaand inzicht in de werkelijkheid van het leven met ReNU-syndroom en geeft tegelijkertijd hoop voor de toekomst.
Meer dan een medische gids is dit boek een eerbetoon aan de kinderen en families die ons dagelijks inspireren met hun moed, doorzettingsvermogen en onvoorwaardelijke liefde.
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