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Held by Lightning: A Memoir of Epilepsy, Identity, and the Fight to Be Understood
Paperback
Publisher: Independently Published
Published: Jun 19 2025
Pages: 72
Weight: 0.24
Height: 0.17 Width: 6.00 Depth: 9.00
Language: English
In Held by Lightning, therapist and author Carina Schroedel shares the untold story of living with epilepsy from the inside out. Diagnosed at thirteen, she grew up navigating seizures, stigma, memory loss, and the trauma of being misunderstood by doctors, employers, and even herself.
Part memoir, part manifesto, this book explores the lived reality of invisible illness-and what it means to live, mother, and lead while navigating a nervous system that doesn't always cooperate. The second half offers guidance for clinicians and advocates, with tools for supporting clients living with epilepsy.
Honest, unflinching, and deeply human, Held by Lightning is for anyone who has ever felt unseen-and for those ready to see with new eyes.
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