Sign-In
Cart
The AEC Syndrome Sourcebook: A Guide to Hay-Wells Syndrome for Patients and Families
Paperback
Currently unavailable to order
Please enter your email and a message will be sent to you when this product becomes available on our website.
ISBN13: 9798300112707
Publisher: Independently Published
Published: Nov 15 2024
Pages: 118
Weight: 0.37
Height: 0.25 Width: 6.00 Depth: 9.00
Language: English
Publisher: Independently Published
Published: Nov 15 2024
Pages: 118
Weight: 0.37
Height: 0.25 Width: 6.00 Depth: 9.00
Language: English
Living with AEC syndrome, also known as Hay-Wells syndrome, can feel overwhelming, but you are not alone. This comprehensive guide is designed to empower patients, families, and caregivers with the knowledge and tools needed to navigate the challenges of this rare genetic condition.
Inside this sourcebook, you'll discover:
Inside this sourcebook, you'll discover:
- Clear, accessible explanations of AEC syndrome's causes, symptoms, and treatments.
- Practical strategies for managing medical care, including chronic wounds, dental issues, and cleft palate repair.
- Real-life stories from patients and families, offering inspiration and firsthand insights.
- Emotional and social support to build confidence, resilience, and connections within the AEC community.
- Resources and tools for advocacy, education, and everyday life.
Also from
White Mat, Cheryl
The Adult Still's Disease Patient's Sourcebook: Your comprehensive guide to AOSD
White Mat, Cheryl
Paperback
$23.92
Reactive Hypoglycemia Quackery: Exposing Myths and Dangerous Treatments
Wilson, Shane
White Mat, Cheryl
Paperback
$15.00
The Dermatitis Herpetiformis Patient's Sourcebook: Your Comprehensive Guide to Duhring's Disease
White Mat, Cheryl
Paperback
$23.92
Also in
Health General
The Tao of Immortality: The Four Healing Arts and the Nine Levels of Alchemy
Wei, William U.
Chia, Mantak
Paperback
$37.95
The Adventurous Eaters Club: Mastering the Art of Family Mealtime
Collins, Vicki
Collins, Misha
Hardcover
$14.99
The Healthy Deviant: A Rule Breaker's Guide to Being Healthy in an Unhealthy World
Gerasimo, Pilar
Paperback
From $11.99
Wheat Belly: Lose the Wheat, Lose the Weight, and Find Your Path Back to Health
Davis, William
Hardcover
$9.99
Essential Oils for the Whole Body: The Dynamics of Topical Application and Absorption
Godfrey, Heather Dawn
Paperback
$23.74
The Healing Power of the Mind: Practical Techniques for Health and Empowerment
Alexander, Rolf
Paperback
$12.30
Being Well (Even When You're Sick): Mindfulness Practices for People with Cancer and Other Serious Illnesses
Rosenbaum, Elana
Paperback
From $4.98
The Blue Zone: Lessons for Living Longer from the People Who've Lived the Longest
Buettner, Dan
Hardcover
$11.99
All about Allergies: Everything You Need to Know about Asthma, Food Allergies, Hay Fever, and More
Rubin, Zachary, MD
Hardcover
$27.00
Nourishing Traditions: The Cookbook That Challenges Politically Correct Nutrition and the Diet Dictocrats
Fallon, Sally
Enig, Mary
Paperback
From $19.99
Body Electric: The Hidden Health Costs of the Digital Age and New Science to Reclaim Your Well-Being
Diaz, Keith
Zomorodi, Manoush
Hardcover
$28.49
Dopamine Kids: A Science-Based Plan to Rewire Your Child's Brain and Take Back Your Family in the Age of Screens and Ultraprocessed Foods
Doucleff, Michaeleen
Hardcover
$27.00
Enough: Your Health, Your Weight, and What It's Like to Be Free
Jastreboff, Ania M.
Winfrey, Oprah
Hardcover
$28.50
10-Minute Chair Yoga Exercises for Seniors: 40 Poses to Build Strength and Flexibility for Fall Prevention
Hattori, April
Paperback
$14.24
Holy Health: Habits and Rhythms to Heal Your Body and Transform Your Life
Roethlingshoefer, Justin
Hardcover
$37.49
Rosemary Gladstar's Medicinal Herbs: A Beginner's Guide: 33 Healing Herbs to Know, Grow, and Use
Gladstar, Rosemary
Paperback
$16.14
You've Been Pooping All Wrong: How to Make Your Bowel Movements a Joy
Pasricha, Trisha, MD MPH
Hardcover
$28.50
Weightless: A Doctor's Guide to Glp-1 Medications, Sustainable Weight Loss, and the Health You Deserve
Salas-Whalen, Rocio, MD
Hardcover
$27.55
Fed Up: What Evolution Reveals about Food, Diet, Health, and Eating Well
Lieberman, Daniel E.
Hardcover
$31.50
Brain Defenders: Harness the Power of Your Immune Cells to Protect Your Brain for Life
Perlmutter, David, M. D.
Hardcover
$30.40
The Invincible Brain: The Clinically Proven Plan to Age-Proof Your Brain and Stay Sharp for Life
Fotuhi, Majid
Hardcover
$30.40
The Biblio Diet: Live Long, Master Metabolism, Reduce Pain, Fight Depression, and Conquer Cancer with Healing Secrets from the Bible
Rubin, Jordan
Axe, Josh
Hardcover
$28.50
The 30-Day Mediterranean Meal Plan and Cookbook: A Beginner's Guide to the World's Best Diet for Long-Term Health and Longevity
Zozos, Alexandria
Paperback
$23.74
Mayo Clinic Guide to a Healthy, Happy Heart: Simple Steps to Achieving Long-Term Cardiovascular Health
Lopez-Jimenez, Francisco
Lerman, Amir
Lara-Breitinger, Kyla M.
Hardcover
$26.09
What to Eat Now: The Indispensable Guide to Good Food, How to Find It, and Why It Matters
Nestle, Marion
Hardcover
From $19.99
The Stimulated Mind: Future-Proof Your Brain from Dementia and Stay Sharp at Any Age
Wood, Tommy
Hardcover
$31.35
The Thyroid Fix: The No-Nonsense Guide to Fix Fatigue, Fogginess, and Fat That Won't Budge
Hornaman, Amie
Hardcover
$28.50
How Not to Die: Revised and Updated: Discover the Foods Scientifically Proven to Prevent and Reverse Disease
Stone, Gene
Greger, Michael
Hardcover
$35.14
The Ultimate Survival Medicine Guide: Emergency Preparedness for Any Disaster
Alton, Joseph
Alton, Amy
Paperback
$18.99
The Hormone Loop: An Empowering Guide to Restoring Hormonal Harmony, from Puberty to Menopause
Goddard, Gillian
Hardcover
$28.50
Mayo Clinic Guide to Arthritis, Revised and Updated: Managing Joint Pain for an Active Life
Arment, Courtney A.
Hardcover
$27.00
Why We Get Sick: The Hidden Epidemic at the Root of Most Chronic Disease--And How to Fight It
Bikman, Benjamin
Paperback
From $11.99
Ibs: Finding and Treating the Root Cause of Irritable Bowel Syndrome
Wentz, Izabella, Pharmd
Hardcover
$30.40
Fast Like a Girl: A Woman's Guide to Using the Healing Power of Fasting to Burn Fat, Boost Energy, and Balance Hormones
Pelz, Mindy
Hardcover
From $12.99
100 No-Equipment Workouts Vol. 1: Easy to Follow Home Workouts Suitable for all Fitness Levels
Rey, Neila
Paperback
$20.99
Independence for Life: The Complete Guide to Building Strength and Regaining Mobility Beyond 50
Harlow, Will
Paperback
$25.64
The Way Out: A Revolutionary, Scientifically Proven Approach to Healing Chronic Pain
Gordon, Alan
Ziv, Alon
Paperback
$19.00
Heal Your Cells: Reversing the Irreversible--A Proven Plan to Heal Faster, Reclaim Energy, and Unlock Longevity
Axe, Josh
Cole, Will
Hardcover
$30.40
The Comfort Crisis: Embrace Discomfort to Reclaim Your Wild, Happy, Healthy Self
Easter, Michael
Hardcover
From $12.99
The Obesity Code: Unlocking the Secrets of Weight Loss (Why Intermittent Fasting Is the Key to Controlling Your Weight)
Fung, Jason
Paperback
From $10.99
Stay Off My Kitchen Table: A Heart Surgeon's 4-Week Elimination Diet for Gut Repair, Metabolic Health, and Longevity
Ovadia, Philip
Lisec, Joshua
Paperback
$28.45
What Your Doctor Doesn't Know about Fibromyalgia: Why Doctors Can't or Won't Treat Chronic Pain
Meilink, Linda
Rhoades, Patrick
Paperback
$15.15
Eight Million Ways to Happiness: Wisdom for Inspiration and Healing from the Heart of Japan
Yoda, Hiroko
Hardcover
$26.10
Histamine Haven: The Essential Guide and Cookbook to Histamine and Mast Cell Activation
Luka Symons
Tracey Reed
Paperback
$33.24
Good Energy: The Surprising Connection Between Metabolism and Limitless Health
Means, Casey
Means, Calley
Hardcover
From $17.99
Long Life Yoga: Essential Practices for Longevity, Well-Being, and Joy at Any Age
Lee, Cyndi
Hardcover
$22.46
Prevent and Reverse Heart Disease: The Revolutionary, Scientifically Proven, Nutrition-Based Cure
Esselstyn, Caldwell B.
Paperback
From $11.99
Feeding Littles Lunches: 75+ No-Stress Lunches Everyone Will Love: Meal Planning for Kids
Delaware, Judy, Otr/L CLC
McNamee, Megan, MPH Rdn
Paperback
$25.64
Mayo Clinic on Alzheimer's Disease and Other Dementias, Revised and Updated: A Guide for People with Dementia and Those Who Care for Them
Lunde, Angela
Graff-Radford, Jonathan
Hardcover
$27.00
The Well-Lived Life: A 102-Year-Old Doctor's Six Secrets to Health and Happiness at Every Age
McGarey, Gladys
Hardcover
$14.99
Longevity...Simplified: Living A Longer, Healthier Life Shouldn't Be Complicated
Luks, Howard J.
Hardcover
$28.49
Bottle Service: Education and Encouragement for Guilt-Free and Successful Formula Feeding
Whitmore, Mallory
Paperback
$17.10
Push: Unlock the Science of Fitness Motivation to Embrace Health and Longevity
Metzl, Jordan D., MD
Metzl, Jordan D., MD
Paperback
$19.95
Some Secrets Should Never Be Kept: Protect children from unsafe touch by teaching them to always speak up
Sanders, Jayneen
Paperback
$13.69
Move, Thrive, and Come Alive: Over 120 Science-Backed Strategies to Move More, Feel Better, and Live Fully
Gonzalez, Kyle
Paperback
$20.90
Hidden Epidemic: Silent Oral Infections Cause Most Heart Attacks and Breast Cancers
Levy, Jd
Paperback
$37.44
Kiss Your Dentist Goodbye: A Do-It-Yourself Mouth Care System for Healthy, Clean Gums and Teeth
Phillips, Ellie
Paperback
$18.00
Indoor Epidemic: 93% Inside Steals Sleep, Focus & Years-The 7% Outdoor Rx Restores Them
La Puma, John
Paperback
$18.99
Genderqueer Menopause: Navigating Menopause for Trans, Gender-Nonconforming, Genderfluid, and Other Queer-Bodied Folx
Firefox Allen, Lasara, MSW
Paperback
$19.90
The Essential Home Apothecary Handbook: Herbal Remedies to Know, Grow, Make, and Use
Reppert-Brill, Susanna
Sams, Tina
Hardcover
$23.74
The Whole Truth: The Hidden Agendas Behind Decades of Health Misinformation--And What to Do about It
Campbell, T. Colin
Campbell, Nelson
Hardcover
$26.55
Super Gut: A Four-Week Plan to Reprogram Your Microbiome, Restore Health, and Lose Weight
Davis, William
Paperback
From $12.99
The Everything Easy Mind Diet Cookbook: 175 Delicious Recipes to Combat Dementia, Improve Cognitive Function, and Support Overall Health
Ellingsworth, Christy
Paperback
$18.05
Super Body: A 3-Week Program to Harness the New Science of Body Composition and Restore Your Youthful Contours
Davis, William
Hardcover
$28.50
The Biblio Diet Study Guide: Live Long, Master Metabolism, Reduce Pain, Fight Depression, and Conquer Cancer with Healing Secrets from the Bible
Rubin, Jordan
Axe, Josh
Paperback
$16.14
But You Look Fine: Trapped in the Hell Between Sick and Well and How to Break Free
Kurtz, Amy
Hardcover
$28.50
Heal Your Body: The Mental Causes for Physical Illness and the Metaphysical Way to Overcome Them
Hay, Louise
Paperback
$14.24
The Anti-Inflammatory Diet Slow Cooker Cookbook: Prep-And-Go Recipes for Long-Term Healing
Given, Madeline
Paperback
$17.09
The Deepest Well: Healing the Long-Term Effects of Childhood Trauma and Adversity
Burke Harris, Nadine
Paperback
$18.04
Aligned: The Data-Driven Guide to Performance, Recovery, and Human Potential
Holmes, Kristen, PhD
Hardcover
$30.40
Glucose Revolution: The Life-Changing Power of Balancing Your Blood Sugar
Inchauspe, Jessie
Hardcover
From $14.99
Longevity Nation: The People, Ideas, and Trends Changing the Second Half of Our Lives
Clinton, Michael
Hardcover
$27.55
5-Minute Chair Yoga for Seniors: Simple Exercises to Improve Mobility and Reclaim Your Confidence
Payge Dolezal, Kierstie
Paperback
$16.14
The Happiest Baby on the Block: The New Way to Calm Crying and Help Your Newborn Baby Sleep Longer
Karp, Harvey
Paperback
From $11.99
10-Minute Strength Training Exercises for Seniors: Exercises and Routines to Build Muscle, Balance, and Stamina
Deboo, Ed, PT
Paperback
$14.24
Enciende Tu Cerebro: La Clave Para La Felicidad, La Manera de Pensar Y La Salud
Leaf, Dra Caroline
Paperback
$18.04
The Complete Bone and Joint Health Plan: Help Prevent and Treat Osteoporosis and Arthritis
Nitzkorski, Sydney
Wittstein, Jocelyn
Paperback
$23.74
When Women Get Sick: An Empowering Approach for Getting the Support You Need
Bloom, Rebecca
Hardcover
$25.64
Chair Yoga for Strength and Balance: Accessible Exercises to Improve Mobility and Relieve Pain
Maitreyi, ML
Paperback
$16.14
Fit Baby, Smart Baby, Your Baby!: From Birth to Age Six
Doman, Douglas
Hagy, Bruce
Doman, Glenn
Paperback
$18.95
Judas Dentistry: How Dentists Scorn Science, Break the Hippocratic Oath, and Wreck Their Patients' Minds and Bodies
Yoho, (Ret) Robert
Paperback
$23.75
Thriving Beyond Fifty (Expanded Edition): 111 Natural Strategies to Restore Your Mobility, Avoid Surgery and Stay Off Pain Pills for Good
Harlow, Will, Msc McSp
Paperback
$23.74
A Never Event: Exposing the Largest Outbreak of Hepatitis C in American Healthcare History
McKnight, Evelyn V.
Bennington, Travis T.
Paperback
$20.34
Your Kid Belongs Here: An Insider's Guide to Parenting Neurodiverse Children
Pryal, Katie Rose Guest
Paperback
$33.28
The Navy Seal's Survival Guide: The Ultimate Bug In Guide for Crisis Readiness & Self-Reliance
Welch, Alvin K.
Paperback
$19.99
The Wonder Weeks: A Stress-Free Guide to Your Baby's Behavior
Plooij, Xaviera
Plooij, Frans X.
Van de Rijt, Hetty
Paperback
$18.95
Mucho Más Que El Cortisol: La Nueva Ciencia de Las Hormonas del Estrés, Los Picos de Glucosa Y El Metabolismo Que Transformará Tu Salud / Stress Teste
Walker, Peter
MacKenzie, Richard
Paperback
$17.05
Cocina Antiinflamatoria: Màs de 100 Recetas Para Sanar / Anti-Inflammatory Cooking: More Than 100 Recipes for Healing
Pã(c)Rez, Irelis
Paperback
$23.70
The Lithium Revolution: Optimizing Mood, Memory, and Lifelong Brain Health With Nutritional Lithium
Greenblatt, James
Paperback
$21.84
Potty Training in 3 Days: The Step-By-Step Plan for a Clean Break from Dirty Diapers
Brucks, Brandi
Paperback
From $5.99
Mayo Clinic Guide to Organ Transplant: A Guide for Patients, Caregivers and Living Donors from the World's Leading Transplant Experts
Heimbach, Julie K.
Taner, C. Burcin
Aqel, Bashar A.
Hardcover
$28.50
Metabolic Freedom: A 30-Day Guide to Restore Your Metabolism, Heal Hormones & Burn Fat
Azadi, Ben
Hardcover
$28.49