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La PSP, passo dopo passo: Comprendere la malattia, affrontare i cambiamenti, accompagnare la persona
Paperback
Series: Parkinson E Dintorni
Health GeneralMedical ReferenceSleep Disorders
Publisher: Independently Published
Published: Jul 20 2026
Pages: 88
Weight: 0.28
Height: 0.18 Width: 6.00 Depth: 9.00
Language: Italian
La PSP, passo dopo passo (Paralisi Sopranuleare Proggressiva) è una guida pensata per la persona con paralisi sopranucleare progressiva, per la famiglia e per chi accompagna il percorso di cura.
La PSP è una malattia rara, complessa e progressiva. Può modificare il movimento, lo sguardo, la voce, la deglutizione, il comportamento e l'autonomia, coinvolgendo profondamente anche chi assiste.
Questo libro aiuta a:
- riconoscere i cambiamenti e prepararsi in tempo;
- affrontare cadute, comunicazione e disfagia;
- rendere la casa più sicura;
- orientarsi tra ausili, assistenza, diritti e servizi;
- parlare di DAT, ultime volontà e scelte di fine vita;
- accompagnare la persona con rispetto, dignità e consapevolezza.
Non offre false promesse e non sostituisce il lavoro dei professionisti. Offre però strumenti concreti, domande utili e una direzione possibile per affrontare le scelte più difficili senza sentirsi completamente soli.
È anche un libro sull'amore, sulla presenza e sulla fedeltà . Perché una diagnosi può cambiare una vita, ma non deve diventare l'unica storia da raccontare.
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