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Malattie invisibili: Malattie rare tra statistica, psicosomatica e logica sistemica
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ISBN10: 3691736718
ISBN13: 9783691736717
Publisher: Bremen University Press
Published: Jan 13 2026
Pages: 166
Weight: 0.44
Height: 0.38 Width: 5.50 Depth: 8.50
Language: Italian
ISBN13: 9783691736717
Publisher: Bremen University Press
Published: Jan 13 2026
Pages: 166
Weight: 0.44
Height: 0.38 Width: 5.50 Depth: 8.50
Language: Italian
Le malattie rare sono considerate casi medici eccezionali. Ciascuna di esse colpisce solo poche persone e molte sembrano statisticamente trascurabili. Eppure, la probabilità di soffrire di una di queste malattie nel corso della vita è elevata. Perché allora queste patologie vengono così spesso trascurate, interpretate in modo errato o diagnosticate solo dopo anni? Questo libro indaga sul motivo per cui la medicina moderna, nonostante l'alta tecnologia, le linee guida e le procedure basate sull'evidenza, raggiunge sistematicamente i propri limiti proprio nel caso delle malattie rare. Dimostra che i ritardi diagnostici non sono un fallimento individuale, ma il risultato di condizioni strutturali: pensiero probabilistico, frammentazione dell'assistenza, pressione temporale, incentivi economici e psicologizzazione affrettata di sintomi inspiegabili. Partendo da una riflessione analitica sulla logica delle decisioni mediche, il libro illustra, sulla base di esempi concreti di malattie, come le malattie rare scompaiano nella pratica clinica quotidiana. Descrive l'odissea diagnostica di molte persone colpite, le conseguenze psicologiche dell'incertezza prolungata e la situazione paradossale in cui i risultati normali spesso nascondono più di quanto chiariscano. È chiaro che le malattie rare non sono difficili da riconoscere perché sono esotiche, ma perché non rientrano negli schemi abituali. Le malattie rare non appaiono qui come un tema marginale, ma come una pietra di paragone. Chi capisce perché vengono trascurate, capisce meglio i punti di forza - e i punti deboli - della medicina moderna nel suo complesso. Dal 2005, la Bremen University Press ha pubblicato oltre 5.000 libri specialistici in diverse lingue. Gennaio 2026
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