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"C'est dans la tête madame": Témoignage d'une maladie invisible, ces douleurs chroniques ignorées par la médecine - Un combat pour être entendue - His
Paperback
Chronic Fatigue SyndromeGeneral Political Science
Publisher: Independently Published
Published: Aug 19 2025
Pages: 264
Weight: 0.61
Height: 0.55 Width: 5.25 Depth: 8.00
Language: French
Vous les avez déjà entendus, ces mots. Vous connaissez cette salle d'attente où l'on espère encore que ce médecin, peut-être, comprendra, vous croira, trouvera.
Vous le connaissez, ce rendez-vous qui finit en haussement d'épaules. L'épuisement d'avoir à prouver, sans cesse, que quelque chose ne va pas. Et cette solitude-là souffrir d'un mal que personne ne voit.
Elisabeth a connu tout cela. Une douleur surgie un matin, qui n'est jamais repartie et n'a fait que gagner du terrain. La longue valse des spécialistes, comme elle l'appelle. Un nom, enfin, posé sur son mal, puis sept années de traitements au bout desquelles elle prend une décision: tout arrêter. Elle reprend alors la longue route de l'errance, en sachant exactement ce qui l'attend: un double combat, contre la douleur et contre l'indifférence.
Son récit n'est pas une plainte. C'est un miroir. Vous y reconnaîtrez vos rendez-vous, vos espoirs déçus, vos colères tues. Et la preuve, noir sur blanc, que vous n'avez rien inventé.
Mais C'est dans la tête, madame ne s'arrête pas à la douleur. C'est aussi l'histoire de ce que ce parcours peut devenir, sans rien nier de sa dureté un moteur de volonté, de lucidité, de résilience. Vous ne refermerez pas ce livre à bout de forces. Vous le refermerez un peu plus debout.
Ce témoignage est pour vous si vous vivez avec une fibromyalgie, une fatigue, des douleurs chroniques, un syndrome d'Ehlers-Danlos, une maladie qu'on peine à reconnaître. Pour vous qui avancez dans cette errance, face à l'indifférence. Il est aussi pour celles et ceux qui veulent enfin comprendre de l'intérieur ce que ces malades traversent.
Note de l'autrice
Des milliers de maladies restent aujourd'hui mal connues, mal nommées, et touchent pourtant des millions de personnes. Trop souvent, une médecine trop pressée les range dans des cases, à tort. Je plaide pour un monde où chaque malade pourra faire entendre sa voix. Et où les difficultés ne seront plus des freins, mais le moteur de tous les possibles.
De la même autrice: Ce que personne ne voit, un essai, un manifeste, sur la maladie, le handicap et la douleur invisibles.
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