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Ma vie en Pixels: Prisonnier de son corps, libre dans sa tête.
Paperback
Publisher: Independently Published
Published: Jul 10 2026
Pages: 148
Weight: 0.46
Height: 0.34 Width: 6.00 Depth: 9.00
Language: French
La France a son Stephen Hawking. Il s'appelle Alexandre, il a 24 ans, et il vient d'écrire son premier livre, avec ses yeux.
Comme le célèbre physicien britannique, Alexandre est prisonnier d'un corps qui ne lui obéit pas. Depuis sa naissance, le 18 octobre 2001, à la suite d'un manque d'oxygène qui a laissé des séquelles profondes, il ne marche pas, ne parle pas, ne peut pas serrer la main de son père dans la sienne. Et comme Hawking avant lui, ce corps immobile abrite un esprit d'une intelligence rare, un esprit qu'il aura pourtant fallu treize ans pour révéler au monde.
Treize années où personne, pas même ses parents qui l'aiment de tout leur coeur, ne sait vraiment ce qu'Alexandre pense, comprend, ressent derrière son regard. Treize années où son père, policier, pose un jour l'uniforme pour le porter, lui, chaque matin, sans jamais faiblir. Où sa mère refuse tous les pronostics. Où son petit frère grandit à ses côtés, certain d'une seule chose: que ce grand frère mérite d'être traité comme n'importe quel autre.
Puis, à ses treize ans, une tablette est posée devant ses yeux. Et comme Hawking avec sa synthèse vocale, Alexandre trouve enfin sa voix, lettre après lettre, pixel après pixel.
Ce qu'il fait ensuite dépasse toutes les attentes, il apprend seul à coder, la nuit, avec pour seul clavier son regard posé sur un écran. De cette obstination naît une entreprise bien réelle, la preuve la plus éclatante qu'un corps immobile peut porter un esprit brillant, créatif, entrepreneur.
Ma vie en pixels raconte cette histoire à trois voix, celle d'Alexandre, qui a mis treize ans à être entendu, celle de son père, pilier silencieux, celle de son frère, qui n'a jamais eu besoin d'attendre pour l'aimer tel qu'il est.
Un témoignage rare, qui prouve qu'un génie peut se cacher derrière n'importe quel silence.
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