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My Baby has Sickle Cell Disease: Support and guidance for parents raising a child with Sickle Cell Disease.
Paperback
ISBN13: 9781701611887
Publisher: Independently Published
Published: Oct 30 2019
Pages: 108
Weight: 0.37
Height: 0.26 Width: 6.00 Depth: 9.00
Language: English
You spent the last 9 months looking forward to the day you will meet your little one, hold them in your hands, kiss them and introduce them to the rest of the family. So when they was born and you held them in your hands, you were elated. But soon after, you received one of the most painful, disheartening and frightening news; your child has sickle cell disease or probably you may have received the news earlier before they was even born.
As a parent, you may blame yourself for this, think that maybe you could have done something differently. You may even think that you are alone and no one seems to understand what you and your family may be going through, and the truth is that many people might not understand what you are going through but you are not alone. Did you know that over 14000 people live with SCD in the UK with 350 babies born each year with the condition in England?
When I learned my child had sickle cell disease, I was crushed. It took a while for me to accept the situation and care for him and I have learned a lot throughout the process. My son has grown up and we have learned how he can live a full life even with his condition.
I wrote this book to share my experience of having a child with sickle cell disease to create more awareness and for people to learn more about the disease in an easily understandable way.
This book provides comprehensive information about sickle cell disease to equip you with all the information you need to take care of your child.
Here is what the book covers:- A comprehensive understanding of sickle cell disease
- Common myths about sickle cell disease
- How to deal with denial, guilt and criticism as a parent
- Sickle cell disease at different ages
- The importance of emotional support throughout this journey
- How your life changes when you have a child with sickle cell disease
- How best to communicate with the caregivers
- How best to strengthen the immune system
- The role of nutrition and exercise in people who have sickle cell disease
- Experiences of people who have lived with sickle cell disease
- Among many other things
If you are looking for information to help you understand sickle cell disease to equip you with the knowledge to better care for your child.....
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