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DinoLena: S'tapfere Meitli, wo dä chline Langerhans-Zelle schwümme biibringt.
Paperback
ISBN13: 9783952577707
Publisher: Paula Ruckstuhl
Published: Nov 12 2022
Pages: 38
Weight: 0.14
Height: 0.10 Width: 6.50 Depth: 6.50
Language: Swiss German; Alemannic
Lena ist zwei Jahre alt, als sie anfängt, viel zu trinken. Nach einer langen, ungewissen und auch ängstlichen Zeit folgte die Diagnose Diabetes insipidus oder Wasserdiabetes. Nach weiteren Untersuchungen wurde klar, dass Lena an der sehr seltenen Krankheit LCH (Langerhans-Zell-Histiozytose) leidet. Die Folgen sind in der Regel behandelbar, die Ursache ist jedoch noch unbekannt.
Weil Lena und ihr Bruder Remo noch so klein sind, ist es schwierig zu erklären, wieso sie immer ins Spital fahren und Medikamente nehmen muss, von denen sie sich ab und zu schlecht fühlt. Von Anfang an erfanden wir, während den Spitalbesuchen, kleine Geschichten, um die verschiedenen Situationen verständlicher zu machen. Hierauf ist dieses Büchlein entstanden. Wir wünschen uns, dass andere Kinder und Betroffene, die etwas Ähnliches erleben müssen, auch von der Geschichte DinoLena profi tieren können.
Das Buch ist verfügbar in Hardcover, Paperback und als eBook und in verschiedenen Sprachen übersetzt:
Schweizerdeutsch DinoLena - S'tapfere Meitli, wo dä chline Langerhans-Zelle schwümme biibringt.
ISBN 978-3-9525656-1-2 (Hardcover)
ISBN 978-3-9525656-5-0 (eBook)
ISBN 978-3-9525777-0-7 (Paperback)
Niederländisch DinoLena - Het dappere meisje dat de Langerhanscelletjes zwemmen leert. (Originaltitel)
Deutsch DinoLena - Das tapfere Mädchen, das den kleinen Langerhans-Zellen das Schwimmen beibringt.
Englisch DinoLena - The brave little girl that teaches the small Langerhans cells how to swim.
Follow us on Instagram: dinolena_fightslch
Contact us: dinolena.fightslch@gmail.com
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Ruckstuhl, Paula
DinoLena: Das tapfere Mädchen, das den kleinen Langerhans-Zellen das Schwimmen beibringt.
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DinoLena: The brave little girl that teaches the small Langerhans cells how to swim.
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DinoLena: Das tapfere Mädchen, das den kleinen Langerhans-Zellen das Schwimmen beibringt.
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DinoLena: The brave little girl that teaches the small Langerhans cells how to swim
Ruckstuhl, Paula
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DinoLena - S'tapfere Meitli, wo dä chline Langerhans-Zelle schwümme biibringt.
Ruckstuhl, Paula
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