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DinoLena: het dappere meisje dat de Langerhanscelletjes zwemmen leert.
Hardcover
ISBN13: 9783952565605
Publisher: Paula Ruckstuhl
Published: Nov 11 2022
Pages: 38
Weight: 0.64
Height: 0.25 Width: 8.00 Depth: 8.00
Language: Dutch
Lena is twee jaar, als ze enorm veel begint te drinken. Na een lange, onzekere en ook angstige periode, volgde de diagnose diabetes insipidus, oftewel water diabetes. Na verder onderzoek werd duidelijk dat Lena de zeer zeldzame ziekte LCH heeft (Langerhanscelhistiocytose). De gevolgen hiervan zijn meestal te behandelen, maar de oorzaak is tot nu toe onbekend.
Doordat Lena en haar broertje Remo nog zo klein zijn, is het lastig uit te leggen waarom Lena steeds naar het ziekenhuis moet en medicijnen krijgt waar ze zich soms slecht van gaat voelen. Elk moment dat we samen in het ziekenhuis doorbrachten, bedachten we daarom samen verhaaltjes die de situaties begrijpelijker maakten en haar helpen de behandelingen zonder angst te doorgaan. Daaruit is dit boekje ontstaan. We hopen dat andere kindjes en betrokkenen, die hetzelfde door moeten maken, iets aan het verhaal van DinoLena hebben.
Het boek is verkrijgbaar in Hardcover, Paperback en als eBook en in verschillende talen vertaald:
DinoLena - Het dappere meisje dat de Langerhanscelletjes zwemmen leert. (Origineel)
ISBN 978-3-9525656-0-5 (Hardcover)
ISBN 978-3-9525656-4-3 (eBook)
ISBN 978-3-9525656-8-1 (Paperback)
Schweizerdeutsch DinoLena - S'tapfere Meitli, wo dä chline Langerhans-Zelle schwümme biibringt.
Deutsch DinoLena - Das tapfere Mädchen, das den kleinen Langerhans-Zellen das Schwimmen beibringt.
Englisch DinoLena - The brave little girl that teaches the small Langerhans cells how to swim.
Follow us on Instagram: dinolena_fightslch
Contact us: dinolena.fightslch@gmail.com
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Ruckstuhl, Paula
DinoLena: Das tapfere Mädchen, das den kleinen Langerhans-Zellen das Schwimmen beibringt.
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DinoLena: The brave little girl that teaches the small Langerhans cells how to swim.
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DinoLena: S'tapfere Meitli, wo dä chline Langerhans-Zelle schwümme biibringt.
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DinoLena: Das tapfere Mädchen, das den kleinen Langerhans-Zellen das Schwimmen beibringt.
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DinoLena: The brave little girl that teaches the small Langerhans cells how to swim
Ruckstuhl, Paula
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DinoLena - S'tapfere Meitli, wo dä chline Langerhans-Zelle schwümme biibringt.
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