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After the Worst Day Ever: What Sick Kids Know about Sustaining Hope in Chronic Illness

After the Worst Day Ever: What Sick Kids Know about Sustaining Hope in Chronic Illness

Hardcover

Medical ReferenceDeath & Dying

Currently unavailable to order

ISBN10: 0807024694
ISBN13: 9780807024690
Publisher: Beacon Press
Published: Mar 19 2024
Pages: 192
Weight: 0.78
Height: 0.79 Width: 5.78 Depth: 8.65
Language: English
For those who care for chronically ill children, a new understanding of hope that equips adults to better nurture pediatric hope among sick kids--articulated by the children themselves

As anyone with a chronic illness knows, hope can sometimes be hard to come by. For parents and caregivers of children with serious illness, there can be a real struggle to move beyond one's own grief, fear, and suffering to see what hope means for these kids.

Duane Bidwell, a scholar, minister, and former hospital chaplain who has struggled with serious illness himself, spent time with 48 chronically ill children in dialysis units and transplant clinics around the United States. Chronically ill kids, he found, don't adhere to popular or scholarly understandings of hope. They experience hope as a sense of well-being in the present, not a promise of future improvement, an ability to set goals, or the absence of illness and suffering. With this mindset, these kids suggest a new understanding of pediatric hope, saying hope becomes concrete when they

  1. realize community,
  2. claim power,
  3. attend to Spirit,
  4. choose trust, and
  5. maintain identity.

Also from

Bidwell, Duane R.

Also in

Death & Dying