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Unbound: Notes from a Reluctant Disability Activist
Paperback
Biographies GeneralHealth GeneralLetters & Essays
Publisher Price: $19.95
ISBN13: 9781958888520
Publisher: Blair
Published: Jun 24 2025
Pages: 292
Weight: 0.90
Height: 0.80 Width: 5.90 Depth: 8.90
Language: English
This insightful and often witty collection of essays charts the making of a reluctant disability activist--including his commentary for NPR, the New York Times and elsewhere.
Ben Mattlin was born in 1962 with spinal muscular atrophy, a congenital and progressive neuromuscular weakness. He never stood or walked but grew up expecting a normal life. In this book of essays, he chronicles that life and also charts his growth as a reluctant disability activist and public intellectual.
Mattlin's disability was from birth. Raised in a family that insisted that he be educated in a mainstream setting, he never thought about his disability as being an obstacle until adulthood. It was not until he had graduated from Harvard and could not find a job that he began to understand what disability rights activists were talking about.
These collected short pieces chronicle Mattlin's intellectual coming-of-age including his beginnings, difficult conversations about disability, the social aspects of being disabled in a nondisabled world, and a wider perspective as the author looks back on his sixty years of disability. The book contains a variety of essays intermixed with a few edited podcast transcripts. Some of the pieces are deeply personal; others are stridently political. All of them are guaranteed to make readers see life and the world in a new way.
Altogether, this collection is a frank, unsentimental examination of some of the most important and moving issues of our day--always rendered with intelligence, sensitivity, and a liberal sprinkling of humor.
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