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Open Daily: 10am - 10pm | Alley-side Pickup: 10am - 7pm
3038 Hennepin Ave Minneapolis, MN
612-822-4611
Prof. Hong Explores Duchenne Muscular Dystrophy

Prof. Hong Explores Duchenne Muscular Dystrophy

Paperback

Series: The Rare Journey

Self Help

ISBN13: 9798177877563
Publisher: Independently Published
Published: Oct 1 2026
Pages: 38
Weight: 0.32
Height: 0.10 Width: 8.50 Depth: 11.00
Language: English
Join me, Prof. Hong, on another unforgettable adventure in the Rare Journey series as we explore Duchenne muscular dystrophy, also known as DMD.

Our scientific journey introduces us to the Vertin family, whose lives changed when three brothers, Max, Rowen, and Charlie, were diagnosed with DMD. Together, we will discover why their muscles work differently, what an important protein called dystrophin does, and how doctors, researchers, therapists, and families are working toward a brighter future.

DMD presents the Vertin family with challenges, but it does not define them. Max goes to college, Rowen loves wrestling, and Charlie participates in his high school marching band. Alongside their parents and four siblings, the brothers show us that life with a rare disease can still be filled with goals, laughter, accomplishments, and love.

Blending real science with a powerful true story, Prof. Hong Explores Duchenne Muscular Dystrophy helps young readers understand genetics, symptoms, treatments, accessibility, and the importance of inclusion. The book also includes child-friendly vocabulary and extension activities in science, social studies, language arts, math, and art.

Most importantly, this story reminds readers to look beyond a diagnosis and see the person, family, and possibilities behind it.

Every rare journey begins with curiosity. Every discovery begins with a question.

The Rare Journey Series

The Rare Journey series features educational books inspired by true stories from the rare disease community. Each adventure encourages children to ask questions, search for answers, celebrate differences, and imagine what may be possible through science.

The world needs more researchers, educators, scientists, advocates, and curious young minds like yours. By purchasing a book from this series, you are also helping support children and families in the rare disease community.

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