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Mnd: One Couples' Journey
Paperback
Biographies GeneralHealth General
ISBN13: 9781803699264
Publisher: New Generation Publishing
Published: Oct 11 2023
Pages: 90
Weight: 0.23
Height: 0.22 Width: 5.00 Depth: 8.00
Language: English
Motor Neurone Disease is a vile affliction that gradually robs the sufferer of all their independence and dignity, locking both invalid and carer into a death spiral. This book charts one couple's journey and its brutal physical and emotional impact. Despite being an always fatal condition, MND enjoys
only Cinderella status in respect of both research funding and charitable giving. As such all the royalties from this book will be donated to MND Association. It charts also the truism that fighting a terminal illness is only a part of your battle when you run up against those great organs of the British state; the local authority and the NHS. As it turned out my wife died before we got into any battles about funding, but there was no avoiding
conflict with the NHS, with Covid and the response to it as an inescapable backcloth. The book charts the emotionally exhausting battle with bureaucrats, when our freedoms were surrendered to an unfeeling officialdom that at times seemed drunk on its power. I am reminded of the words of Benjamin Franklin; 'Those who choose safety over liberty deserve neither.' This book is a microcosm of how we were governed during the pandemic.
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