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Open Daily: 10am - 10pm | Alley-side Pickup: 10am - 7pm
3038 Hennepin Ave Minneapolis, MN
612-822-4611
My World: Living with a Rare Disease

My World: Living with a Rare Disease

Paperback

Biographies GeneralHealth General

ISBN10: 1634103432
ISBN13: 9781634103435
Publisher: Strategic Book Publishing
Published: Feb 10 2026
Pages: 28
Weight: 0.10
Height: 0.08 Width: 5.00 Depth: 8.00
Language: English
How could a day that started out so spectacularly, turn out so bad? As my tears began to fall, I wondered, why me?

On that day, I learned that I am one of every 2 million people who have Amyloid Disease or amyloidosis. The disease occurs when abnormal proteins called amyloid build up in organs and tissues, disrupting their normal functions. It's most common in the heart, kidneys, nerves, and liver. Symptoms vary widely and include fatigue, swelling, shortness of breath, numbness, or GI issues. Diagnosis is tricky, which is why Amyloid detection can hide for years.

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