Open Daily: 10am - 10pm | Alley door pickup 10am - 7pm 3038 Hennepin Ave Minneapolis, MN
612-822-4611

  • Open Daily: 10am - 10pm
    Alley-side Pickup: 10am - 7pm

    3038 Hennepin Ave Minneapolis, MN
    612-822-4611

Open Daily: 10am - 10pm | Alley-side Pickup: 10am - 7pm
3038 Hennepin Ave Minneapolis, MN
612-822-4611
More Than You Can Handle: A Rare Disease, a Family in Crisis, and the Cutting-Edge Medicine That Cured Theincurable

More Than You Can Handle: A Rare Disease, a Family in Crisis, and the Cutting-Edge Medicine That Cured Theincurable

Sancho, Miguel

Paperback

Biographies GeneralMedical ReferenceGeneral Parenting

Currently unavailable to order

ISBN10: 0593421361
ISBN13: 9780593421369
Publisher: Avery Publishing Group
Published: Mar 1 2022
Pages: 336
Weight: 0.75
Height: 1.00 Width: 5.40 Depth: 8.10
Language: English
Now in paperback. The personally harrowing and medically enthralling story of a family's struggle to save a child from a deadly immune deficiency.

A journey through the deepest valleys and highest peaks of parenting. When a two-month-old baby falls ill, his apparently ordinary symptoms turn out to signal a rare and lethal immune deficiency. For parents Miguel Sancho and Felicia Morton, the discovery that their son, Sebastian, has chronic granulomatous disease (CGD) upends their lives and leaves the family with few options, all of them terrifying. With Sebastian at constant risk of deadly infection, they spend the next six years in some degree of self-quarantine, with all its attendant anxieties and stressors, as they struggle to keep their son alive, their marriage intact, and themselves sane.

The quest for a cure leads them into the alternate universe of the rare-disease community, and to the cutting edge of modern medicine, as their personal crises send them fumbling through various modalities of self-help, including faith, therapy, and meditation. With brutal honesty, Sancho describes how his struggles derail his career, put his marriage on life support, get his family evicted from a Ronald McDonald House, and ruin a Make-A-Wish trip.

Sancho's riveting tale of the diagnosis and treatment of his son's illness takes us deep inside the workings of the immune system, and into the radically innovative treatment used to repair it. Ultimately Sebastian is saved with a stem cell transplant using discarded umbilical cord blood, a groundbreaking technique pioneered and practiced by the medical wizards at Duke University Hospital.

Deeply researched and darkly humorous, this is a wrenching tale with a triumphant ending.

Also from

Sancho, Miguel

View All

Also in

Biographies General

View All