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Living Beside the Leaving: A Daughter's Story of Alzheimer's, Caregiving, and Loss
Paperback
Biographies GeneralHealth GeneralSelf-Help
Publisher: Independently Published
Published: May 10 2026
Pages: 106
Weight: 0.34
Height: 0.22 Width: 6.00 Depth: 9.00
Language: English
There is a kind of grief that begins before goodbye. This is anticipatory grief.
As Alzheimer's disease began changing my mother, I did not yet have language for what I was living through. I only knew that something in our relationship had shifted. I was still her daughter, but I was also becoming her caregiver. I was trying to stay present, but part of me was already bracing for what was coming. I was already practicing goodbye long before the final goodbye.
Living Beside the Leaving follows the complicated and often lonely space of anticipatory grief: the decisions no one feels ready to make, like surrendering car keys; the guilt that comes with exhaustion; the tenderness that still appears, like the flicker of recognition in a favorite song; and the ache of missing someone while they are sitting right in front of you.
It is also a book about holding on to the whole person, not only the illness.
- The relationship before caregiving changed it.
- The ordinary moments that become proof of love later.
- The person who existed before the diagnosis became the center of the story.
Written for adult children, caregivers, spouses, and anyone who has loved someone through Alzheimer's disease, illness, or decline, Living Beside the Leaving is a story about presence, responsibility, and love. It follows what it takes to stay human through caregiving's ordinary demands, impossible decisions, and final hours at the bedside.
For anyone who has ever thought, I am losing them, but they are still here, this book offers language for what you may not have known how to name and the quiet reminder that you are not alone in it.
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