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Quand l'hérédité bouscule la famille: Enfants drépanocytaires, les parents témoignent
Paperback
Series: Sciences Et Société
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ISBN10: 2343152799
ISBN13: 9782343152790
Publisher: Editions L'Harmattan
Pages: 156
Weight: 0.40
Height: 0.33 Width: 5.32 Depth: 8.47
Language: French
ISBN13: 9782343152790
Publisher: Editions L'Harmattan
Pages: 156
Weight: 0.40
Height: 0.33 Width: 5.32 Depth: 8.47
Language: French
La drépanocytose, maladie génétique grave, liée à une mutation de l'hémoglobine, est malheureusement très fréquente en France et dans le monde. La naissance d'un enfant atteint fait dévier les familles vers un chemin chaotique, dangereux et bien mal tracé. Même avec les progrès continuels des soins, une grande incertitude pronostique persiste qui tient pour une bonne part aux conditions d'accès réel aux soins optimisés. Ainsi il est aujourd'hui impératif de donner la parole aux familles confrontées à cette maladie et à ses complications.
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