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Mon ventre a une histoire: Un combat contre Hirschsprung
Paperback
Publisher: Independently Published
Published: Jun 5 2025
Pages: 38
Weight: 0.25
Height: 0.10 Width: 8.50 Depth: 8.50
Language: French
Mon ventre a une histoire raconte avec tendresse et poésie le combat d'un petit garçon atteint de la maladie de Hirschsprung, de sa naissance jusqu'à ses deux ans.
À travers ses yeux d'enfant, on découvre son quotidien entre urgences vitales, séjours à l'hôpital, soins médicaux, mais aussi espoir, résilience et moments de joie en famille.
Dès ses premiers jours de vie, il est pris en charge en urgence et subit une colostomie (temporaire), qu'il appelle affectueusement sa cloche magique dans le livre - une manière imagée et douce d'aborder une réalité médicale difficile.
Le récit explique également, avec des mots simples et accessibles, les impacts de la maladie, notamment l'apparition régulière d'entérocolites, et propose une façon ludique et pédagogique d'expliquer ce qui se passe dans le ventre d'un enfant malade.
C'est un récit vrai, illustré et profondément émouvant, qui permet de parler de la maladie avec simplicité, douceur et courage, aussi bien aux enfants qu'aux adultes.
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