Open Daily: 10am - 10pm | Alley door pickup 10am - 7pm 3038 Hennepin Ave Minneapolis, MN
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  • Open Daily: 10am - 10pm
    Alley-side Pickup: 10am - 7pm

    3038 Hennepin Ave Minneapolis, MN
    612-822-4611

Open Daily: 10am - 10pm | Alley-side Pickup: 10am - 7pm
3038 Hennepin Ave Minneapolis, MN
612-822-4611
The Ethics and Governance of Human Genetic Databases: European Perspectives

The Ethics and Governance of Human Genetic Databases: European Perspectives

Chadwick, Ruth
Arnason, Vilhjalmur
Hayry, Matti

Hardcover

Series: Cambridge Law, Medicine and Ethics, Book 4

Medical ReferenceGeneral Law

ISBN10: 0521856620
ISBN13: 9780521856621
Publisher: Cambridge University Press
Published: Apr 19 2007
Pages: 296
Weight: 1.34
Height: 0.90 Width: 6.41 Depth: 9.00
Language: English
The Medical Biobank of Umeå in Sweden, deCODE's Health Sector Database in Iceland, the Estonian Genome Project and the UK Biobank contain health data and genetic data from large populations. Some include genealogical or lifestyle information. They are resources for research in human genetics and medicine, exploring interaction between genes, lifestyle, environmental factors and health and diseases. The collection, storage and use of this data raise ethical, legal and social issues. In this book, first published in 2007, bioethics scholars examine whether existing ethical frameworks and social policies reflect people's concerns, and how they may need to change in light of new scientific and technological developments. The ethical issues of social justice, genetic discrimination, informational privacy, trust in science and consent to participation in database research are analyzed, whilst an empirical survey, conducted in the four countries, demonstrates public views of privacy and related moral values in the context of human genetic databases.

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