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Entanglements of Rare Diseases in the Baltic Sea Region

Entanglements of Rare Diseases in the Baltic Sea Region

Hardcover

Series: Anthropology of Well-Being: Individual, Community, Society

AnthropologyGeneral Racism & Ethnic StudiesGeneral Sociology

ISBN10: 1666942383
ISBN13: 9781666942385
Publisher: Lexington Books
Published: Oct 16 2023
Pages: 224
Weight: 1.10
Height: 0.63 Width: 6.00 Depth: 9.00
Language: English
Although rare diseases have captured public attention in recent decades, the lived experiences of people affected by these conditions remain on the periphery of medical anthropological inquiry. Focusing on Poland, Finland, and Sweden, and foregrounding notions of rare or chronic disease as an embedded category, this book critically analyzes entanglements between people and families with rare diseases and care practices that involve local healthcare policies, practitioners, and treatment modalities. Drawing on locally grounded case studies, Entanglements of Rare Diseases in the Baltic Sea Region constitutes a unique and important contribution to both global medicine and social science scholarship.

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Anthropology