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Duchenne & I
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Publisher: Independently Published
Pages: 544
Weight: 1.58
Height: 1.10 Width: 6.00 Depth: 9.00
Language: English
Duchenne muscular dystrophy is the best-known disease that causes muscle wasting. It is the most common muscular dystrophy in children. The disease is inherited in a recessive manner on the X chromosome, meaning that its actual manifestation occurs only in boys. The disease was named after the French doctor Duchenne de Boulogne in 1861.
This is the story of a lively little boy who, as an adult, can only dream of walking. Juha Olavi Rahkonen's life has been a struggle with a rare neurological disease. Juha Rahkonen speaks openly about his daily life, thoughts, and hobbies; he has, among other things, published several fantasy novels. The reader also learns of the difficulties he has faced - and overcome as a winner. But victory cannot continue forever. Today, Juha is already living on borrowed time, having exceeded all life expectancy predictions.
The truth of my weakness, I cannot escape
I will meet it eye to eye every coming morning
Nothing on this earth can remove this obstacle
The sun always keeps shining, even if I cannot keep going
Time runs away
Time is running out.
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