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Open Daily: 10am - 10pm | Alley-side Pickup: 10am - 7pm
3038 Hennepin Ave Minneapolis, MN
612-822-4611
The Ben Book: A father's memoir

The Ben Book: A father's memoir

Paperback

Biographies General

ISBN10: 1760418862
ISBN13: 9781760418861
Publisher: Ginninderra Press
Published: Mar 24 2020
Pages: 162
Weight: 0.47
Height: 0.37 Width: 5.50 Depth: 8.50
Language: English

On one level, Benjamin Bede Galvin lived his own unique and special life. As his father, I coped (or did not cope) as best I could with being his father, and my story is also an idiosyncratic one. Yet on another level, we are both representative of concentration points of our times. Benjamin was a textbook case of a boy, and then a young man, with Duchenne muscular dystrophy, and what it means to live and die from this disease, in Australia, in suburban Adelaide, at the end of the twentieth century and the beginning of the twenty-first. And I am his ageing baby boomer father, handed a script I cannot change very much, from the moment of diagnosis when he was a year old, to the present moment, when I cannot imagine any future day in my life when I will not feel some pain of his loss.

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