When scientists proved in 1984 that HIV causes AIDS, a vaccine race spun into action. But the sprint to develop an AIDS vaccine now more closely resembles a crawl. Jon Cohen elucidates the forces that have hindered the search: unforeseen scientific obstacles, clashing personalities, the uncertain marketplace, haphazard political organization, and serious ethical dilemmas. Beyond a powerful critique, Cohen also offers specific recommendations for accelerating the effort.
In the early 1980s we witnessed the birth of one of the most complex and perplexing social problems faced by modern society: the epidemic of infection with human immunodeficiency virus (HIV), which causes acquired immunodeficiency syndrome (AIDS). Originally published in 1993 this title looks at the social psychology surrounding HIV and AIDS. The organization of the volume centres upon two themes: The Theoretical Roots of Prevention and The Dilemma of the PWA (person with AIDS). The goal of this volume is not to evaluate previous attempts to answer these social problems, but to provide theoretical analyses of some of the basic sociopsychological processes that underlie the problems.
Over 20 years on this is a snapshot of research into HIV and AIDS and attitudes of the time looking at social problems that are very much still with us.
In Southern Perspectives on the Queer Movement: Committed to Home, Sheila R. Morris has collected essays by South Carolinians who explore their gay identities and activism from the emergence of the HIV-AIDS pandemic to the realization of marriage equality in the state thirty years later. Each of the volume's nineteen essays addresses an aspect of gay life, from hesitant coming-out acts in earlier decades to the creation of grassroots organizations. All the contributors have taken public roles in the gay rights movement.
The diverse voices include a banker, a drag queen from a family of prominent Spartanburg Democrats, a marching minister who grew up along the Edisto River, a former Catholic priest and his tugboat dispatcher husband from Long Island, the owner of a feminist bookstore, a Hispanic American who interned for Republican strategist Lee Atwater, a philanthropist politician from Faith, North Carolina, and a straight attorney recognized as the "Mother of Pride" who became active in 1980, when she learned her son was gay.
Southern Perspectives on the Queer Movement challenges the conventional understanding of the LGBTQ movement in the United States in both place and time. Typically associated with pride marches and anti-AIDS activism on both the east and west coasts and rooted in the counterculture of the 1960s and "Stonewall Rebellion" in New York City, Southern variants of the queer liberation movement have found little room in public or scholarly memory. Confronting an aggressively hostile environment in the South, queer political organization was a late-comer to the region. But it was the very unfriendliness of Southern political soil that allowed a unique and, at times, progressive LGBTQ political community to form in South Carolina. The compelling Southern voices collected here for the first time add a missing piece to the complex puzzle of postwar queer activism in the United States.
Harlan Greene, author of the novels Why We Never Danced the Charleston, What the Dead Remember, and The German Officer's Boy, provides a foreword.
In 1994, at the height of the AIDS epidemic in the United States, MK Czerwiec took her first nursing job, at Illinois Masonic Medical Center in Chicago, as part of the caregiving staff of HIV/AIDS Care Unit 371. Taking Turns pulls back the curtain on life in the ward.
A shining example of excellence in the treatment and care of patients, Unit 371 was a community for thousands of patients and families affected by HIV and AIDS and the people who cared for them. This graphic novel combines Czerwiec's memories with the oral histories of patients, family members, and staff. It depicts life and death in the ward, the ways the unit affected and informed those who passed through it, and how many look back on their time there today. Czerwiec joined Unit 371 at a pivotal time in the history of AIDS: deaths from the syndrome in the Midwest peaked in 1995 and then dropped drastically in the following years, with the release of antiretroviral protease inhibitors. This positive turn of events led to a decline in patient populations and, ultimately, to the closure of Unit 371. Czerwiec's restrained, inviting drawing style and carefully considered narrative examine individual, institutional, and community responses to the AIDS epidemic--as well as the role that art can play in the grieving process.
Deeply personal yet made up of many voices, this history of daily life in a unique AIDS care unit is an open, honest look at suffering, grief, and hope among a community of medical professionals and patients at the heart of the epidemic.
Educator Patti Lather and psychologist Chris Smithies observed and chronicled support groups for women diagnosed with HIV. Whether black, Latina, poor, or middle class, the women in these groups share the common bond of living with HIV/AIDS, and they describe how it affects their lives in terms full of practical reality and moving poignancy, as they fight the disease, accept, reflect, live and die with and in it.
This book analyses the impact of HIV and AIDS on performance in the twenty-first century from an international perspective. It marks a necessary reaffirmation of the productive power of performance to respond to a public and political health crisis and act as a mode of resistance to cultural amnesia, discrimination and stigmatisation. It sets out a number of challenges and contexts for HIV and AIDS performance in the twenty-first century, including: the financial interests of the pharmaceutical industry; the unequal access to treatment and prevention technologies in the Global North and Global South; the problematic division between dominant (white, gay, urban, cis-male) and marginalised narratives of HIV; the tension between a damaging cultural amnesia and a potentially equally damaging partner ‘AIDS nostalgia’; the criminalisation of HIV non-disclosure; and, sustaining and sustained by all of these, the ongoing stigmatisation of people living with HIV.
This collection presents work from a vast range of contexts, grouped around four main areas: women’s voices and experiences; generations, memories and temporalities; inter/national narratives; and artistic and personal reflections and interventions.
I am an AIDS doctor. When I began that work in 1992, we knew what caused AIDS, how it spread, and how to avoid getting it, but we didn't know how to treat it or how to prevent our patients' seemingly inevitable progression toward death. The stigma that surrounded AIDS patients from the very beginning of the epidemic in the early 1980s continued to be harsh and isolating. People looked askance at me: What was it like to work in that kind of environment with those kinds of people? My patients are 'those kinds of people.' They are an array and a combination of brave, depraved, strong, entitled, admirable, self-centered, amazing, strange, funny, daring, gifted, exasperating, wonderful, and sad. And more. At my clinic most of the patients are indigent and few have had an education beyond high school, if that. Many are gay men and many of the patients use or have used drugs. They all have HIV, and in the early days far too many of them died. Every day they brought us the stories of their lives. We listened to them and we took care of them as best we could.--from the Introduction
In 1992, Dr. Susan C. Ball began her medical career taking care of patients with HIV in the Center for Special Studies, a designated AIDS care center at a large academic medical center in New York City. Her unsentimental but moving memoir of her experiences bridges two distinct periods in the history of the epidemic: the terrifying early years in which a diagnosis was a death sentence and ignorance too often eclipsed compassion, and the introduction of antiviral therapies that transformed AIDS into a chronic, though potentially manageable, disease. Voices in the Band also provides a new perspective on how we understand disease and its treatment within the context of teamwork among medical personnel, government agencies and other sources of support, and patients.
Deftly bringing back both the fear and confusion that surrounded the disease in the early 1990s and the guarded hope that emerged at the end of the decade, Dr. Ball effectively portrays the grief and isolation felt by both the patients and those who cared for them using a sharp eye for detail and sensitivity to each patient's story. She also recounts the friendships, humor, and camaraderie that she and her colleagues shared working together to provide the best care possible, despite repeated frustrations and setbacks. As Dr. Ball and the team at CSS struggled to care for an underserved population even after game-changing medication was available, it became clear to them that medicine alone could not ensure a transition from illness to health when patients were suffering from terrible circumstances as well as a terrible disease.--Jeffrey Laurence, MD, Professor of Medicine, Weill Cornell Medical College "The New York Times"
As an epidemiologist researching AIDS, Elizabeth Pisani has been involved with international efforts to halt the disease for fourteen years. With swashbuckling wit, fierce honesty, and more than a little political incorrectness, she dishes on herself and her colleagues as they try to prod reluctant governments to fund HIV prevention for the people who need it most: drug injectors, gay men, sex workers, and johns. With verve and clarity, Pisani shows the general reader how her profession really works; how easy it is to draw wrong conclusions from "objective" data; and, shockingly, how much money is spent so very badly.
Carole Campbell examines the position of women in the AIDS epidemic (women living with HIV, and women caring for HIV-infected family members) in a sociocultural context. Campbell draws a connection among women's risk of AIDS, gender roles (particularly adolescent gender role socialization), and male sexual behavior, demonstrating that efforts to contain the spread of the disease to females must also target the male behavior that puts women at risk. This study concludes that compared with men, HIV-infected women face unequal access to care and unequal quality of care. Informed by the moving personal accounts of eleven HIV-infected men and women, this book offers a rare, broad picture of the sociocultural causes and the impact on American society of AIDS among women.