In 28, Stephanie Nolen, the Toronto Globe and Mail's Africa Bureau Chief, puts a human face on the crisis created by HIV/AIDS in Africa. Through riveting anecdotal stories, Nolen brings to life people involved in every aspect of the crisis and explores the effects of an epidemic that well exceeds the Black Plague in magnitude, a calamity ongoing just a 747-flight away. 28's stories are much more than a record of suffering and loss. Through her unprecedented reporting, Nolen introduces women, men, and children fighting vigorously and hopefully on the frontlines of disease: Tigist Haile Michael, a smart, shy 14-year-old Ethiopian orphan fending for herself and her baby brother on the slum streets of Addis Ababa; Alice Kadzanja, an HIV-positive nurse in Malawi, where one in six adults has the virus, and where the average adult's life expectancy is 36; Zachie Achmat, the hero of South Africa's politically fragmented battle against HIV/AIDS. Nolen's stories reveal how the disease works, how it spreads, and how it kills; how it is inextricably tied to conflict, famine, failure of leadership, and the collapse of states, and to the cultures it has ravaged; how treatment works, and how people who can't get it fight to stay alive with courage, dignity, and hope against huge odds. Writing with power, understanding, and simplicity, Stephanie Nolen makes us listen, allows us to understand, and inspires us to care. Timely, transformative, and thoroughly accessible, 28 is essential reading for our times.
Early in the 1980s AIDS epidemic, six gay activists created one of the most iconic and lasting images that would come to symbolize a movement: a protest poster of a pink triangle with the words "Silence = Death." The graphic and the slogan still resonate today, often used--and misused--to brand the entire movement. Cofounder of the collective Silence = Death and member of the art collective Gran Fury, Avram Finkelstein tells the story of how his work and other protest artwork associated with the early years of the pandemic were created. In writing about art and AIDS activism, the formation of collectives, and the political process, Finkelstein reveals a different side of the traditional HIV/AIDS history, told twenty-five years later, and offers a creative toolbox for those who want to learn how to save lives through activism and making art.
When AIDS was first recognized in 1981, most experts believed that it was a plague, a virulent unexpected disease. They thought AIDS, as a plague, would resemble the great epidemics of the past: it would be devastating but would soon subside, perhaps never to return. By the middle 1980s, however, it became increasingly clear that AIDS was a chronic infection, not a classic plague.
In this follow-up to AIDS: The Burdens of History, editors Elizabeth Fee and Daniel M. Fox present essays that describe how AIDS has come to be regarded as a chronic disease. Representing diverse fields and professions, the twenty-three contributors to this work use historical methods to analyze politics and public policy, human rights issues, and the changing populations with HIV infection. They examine the federal government's testing of drugs for cancer and HIV, and show how the policy makers' choice of a specific historical model (chronic disease versus plague) affected their decisions. A powerful photo essay reveals the strengths of women from various backgrounds and lifestyles who are coping with HIV. A sensitive account of the complex relationships of the gay community to AIDS is included. Finally, several contributors provide a sampling of international perspectives on the impact of AIDS in other nations.
None of us is so unique as to be exempt from the human condition.
As the numbers of reported AIDS cases continue to climb, and the disease continues to take more and more lives, those who have to deal with the complexities of this problem continue to ask: How do we care for these terminally ill?
Using letters from patients, questions and answers between patient and doctor, and other compassionate tools, Dr. Elisabeth K bler-Ross, the world's foremost expert on death and dying, shows us how to comfort the seriously ill and help AIDS patients through the critical stages of dying She addresses the stigma surrounding AIDS as a gay disease and makes a special plea for prisoners with AIDS, for women and children with AIDS, and for babies with AIDS. This remarkable book is warm and informative on one of the most important subjects of our time.
The spread of HIV/AIDS affects businesses in all sectors, all industries and all countries. For companies and organizations everywhere, the question is no longer whether to take action on HIV/AIDS but which actions to take. Complete with an impressive collection of complex background and research on HIV/AIDS and a foreword by Dr. Peter Piot, former Executive Director of UNAIDS, this volume collects case studies of managers worldwide faced with challenging HIV/AIDS-related management decisions. AIDS and Business will fascinate the general reader seeking an understanding of the HIV/AIDS pandemic and to the advanced reader looking to develop a more sophisticated understanding of the impact of the disease.
The case studies in this volume, set in nine countries, detail the issues facing businesses operating in areas where HIV/AIDS prevalence is growing. The topics discussed include understanding the role of social and cultural factors in the spread of HIV, the different organizations and institutions fighting the epidemic, designing an HIV communications campaign, HIV testing, ethical issues, marketing ethics and CSR, condoms marketing, and designing an HIV workplace program. Useful as a resource on HIV/AIDS and business, a set of case studies, or a training tool, this book contains a unique range of tools for learning to understand the epidemic, designed from a grounded and practical business perspective.
Society was not prepared in 1981 for the appearance of a new infectious disease, but we have since learned that emerging and reemerging diseases will continue to challenge humanity. AIDS at 30 is the first history of HIV/AIDS written for a general audience that emphasizes the medical response to the epidemic.Award-winning medical historian Victoria A. Harden approaches the AIDS virus from philosophical and intellectual perspectives in the history of medical science, discussing the process of scientific discovery, scientific evidence, and how laboratories found the cause of AIDS and developed therapeutic interventions. Similarly, her book places AIDS as the first infectious disease to be recognized simultaneously worldwide as a single phenomenon.After years of believing that vaccines and antibiotics would keep deadly epidemics away, researchers, doctors, patients, and the public were forced to abandon the arrogant assumption that they had conquered infectious diseases. By presenting an accessible discussion of the history of HIV/AIDS and analyzing how aspects of society advanced or hindered the response to the disease, AIDS at 30 illustrates for both medical professionals and general readers how medicine identifies and evaluates new infectious diseases quickly and what political and cultural factors limit the medical community's response.
Peter Piot, founding executive director of the Joint United Nations Programme on HIV/AIDS (UNAIDS), recounts his experience as a clinician, scientist, and activist fighting the disease from its earliest manifestation to today. The AIDS pandemic was not only catastrophic to the health of millions worldwide but also fractured international relations, global access to new technologies, and public health policies in nations across the globe. As he struggled to get ahead of the disease, Piot found science does little good when it operates independently of politics and economics, and politics is worthless if it rejects scientific evidence and respect for human rights.Piot describes how the epidemic altered global attitudes toward sexuality, the character of the doctor-patient relationship, the influence of civil society in international relations, and traditional partisan divides. AIDS thrust health into national and international politics where, he argues, it rightly belongs. The global reaction to AIDS over the past decade is the positive result of this partnership, showing what can be achieved when science, politics, and policy converge on the ground. Yet it remains a fragile achievement, and Piot warns against complacency and the consequences of reduced investments. He refuses to accept a world in which high levels of HIV infection are the norm. Instead, he explains how to continue to reduce the incidence of the disease to minute levels through both prevention and treatment, until a vaccine is discovered.
While there is a growing list of publications devoted to the AIDS epidemic, Africa, with two-thirds of the world's cases, still receives scant attention. This book may change the way we think about AIDS and how it is being addressed in Africa and the rest of the world.
The book draws on first-hand research and in-depth investigations carried out by a team of researchers from Britain, Zambia and Tanzania, and focuses on the gendered aspect of the struggle against AIDS.
The authors study the severity of the epidemic and the threat it poses to the population and society in Tanzania and Zambia. They argue that the success of strategies against the spread of AIDS in Africa rests on their recognition of existing gendered power relations and that this success might be enhanced if the strategies are built on existing organisational skills and practices, especially among women. Their conclusions have repercussions for all countries around the world, and especially the rest of Africa.
Upon it's first publication twenty years ago, And The Band Played on was quickly recognized as a masterpiece of investigative reporting. An international bestseller, a nominee for the National Book Critics Circle Award, and made into a critically acclaimed movie, Shilts' expose revealed why AIDS was allowed to spread unchecked during the early 80's while the most trusted institutions ignored or denied the threat. One of the few true modern classics, it changed and framed how AIDS was discussed in the following years. Now republished in a special 20th Anniversary edition, And the Band Played On remains one of the essential books of our time.
For thousands of years boys known as "bleeders" faced an early, painful death from hemophilia. Dubbed "the Royal Disease" because of its identification with Queen Victoria, the world's most renowned carrier, hemophilia is a genetic disease whose sufferers had little recourse until the mid-twentieth century. In the first book to chronicle the emergence and transformation of the hemophilia community, Susan Resnik sets her story within our national political landscape-where the disease is also a social, psychological, and economic experience.
Blood Saga includes many players and domains: men with hemophilia and their families, medical personnel, science researchers, and the author herself, who was Director of Education of the National Hemophilia Foundation in the early 1980s. At that time the "miracle treatment" of freeze-dried pooled plasma blood products enabled men with hemophilia to lead full, normal lives. Then the AIDS virus infiltrated the treatment system and over fifty percent of the hemophilia community became HIV-positive. But rather than collapsing, this community refocused its priorities, extended its reach, and helped shape blood safety policies to prevent further tragedy.
The hemophilia community includes people from every socioeconomic and ethnic group, and Resnik's narrative and use of oral histories never lose touch with those affected by the disease. Her extensive informant interviewing allows much of this social history to be told by participants on all levels: parents, wives, nurses, doctors, government agency directors, health care providers, and many others.
Gene insertion therapy now holds the promise of a cure for hemophilia in the near future. Scientific breakthroughs inevitably become intertwined with the industry and academic medical centers that govern the national health care system. And in that system, says Resnik, costs and safety are sometimes contending issues. She makes clear that the lessons learned in Blood Saga apply to all of us.