Spread out over many years and many different publications, the late author and activist Marta Russell wrote a number of groundbreaking and insightful essays on the nature of disability and oppression under capitalism. In this volume, Russell's various essays are brought together in one place in order to provide a useful and expansive resource to those interested in better understanding the ways in which the modern phenomenon of disability is shaped by capitalist economic and social relations. The essays range in analysis from the theoretical to the topical, including but not limited to: the emergence of disability as a "human category" rooted in the rise of industrial capitalism and the transformation of the conditions of work, family, and society corresponding thereto; a critique of the shortcomings of a purely "civil rights approach" to addressing the persistence of disability oppression in the economic sphere, with a particular focus on the legacy of the Americans with Disabilities Act of 1990; an examination of the changing position of disabled people within the overall system of capitalist production utilizing the Marxist economic concepts of the reserve army of the unemployed, the labor theory of value, and the exploitation of wage-labor; the effects of neoliberal capitalist policies on the living conditions and social position of disabled people as it pertains to welfare, income assistance, health care, and other social security programs; imperialism and war as a factor in the further oppression and immiseration of disabled people within the United States and globally; and the need to build unity against the divisive tendencies which hide the common economic interest shared between disabled people and the often highly-exploited direct care workers who provide services to the former.
In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all.Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Powerful and passionate, Care Work is a crucial and necessary call to arms.
On a quest for what matters most, Timothy Shriver discovers the joy of being fully alive
As chairman of Special Olympics, Timothy Shriver has dedicated his life to the world's most forgotten minority-people with intellectual disabilities. And in a time when we are all more rudderless than ever, when we've lost our sense of what's ultimately important, when we hunger for stability but get only uncertainty, he has looked to them for guidance. Fully Alive chronicles Shriver's discovery of a radically different, and inspiring, way of life. We see straight into the lives of those who seem powerless but who have turned that into a power of their own, and through them learn that we are all totally vulnerable and totally valuable at the same time.
In addition, Shriver offers a new look at his family: his parents, Sargent and Eunice Shriver, and his uncles, John, Robert, and Edward Kennedy, all of whom were resolute advocates for those on the margins. Here, for the first time, Shriver explores the tremendous impact his aunt Rosemary, born with intellectual disabilities, had on his entire family and their legacy.
Inspired by the oral historians Studs Terkel and Svetlana Alexievich, From the Periphery will become a classic oral history collection that increases the understanding of the lived experiences of people with disabilities, their responses to oppression, and the strategies they use to fight for empowerment.
"Kevin Connolly has used an unusual physical circumstance to create a gripping work of art. This deeply affecting memoir will place him in the company of Jeanette Walls and Augusten Burroughs." -- Sara Gruen, author of Water for Elephants
"Charming ... Connolly recounts growing up a scrappy Montana kid--one who happened to be born without legs... Double Take] makes for an empowering read." -- People
As featured on 20/20, NPR, and in the Washington Post Kevin Connolly is a young man born without legs who travels the world--by skateboard, with his camera--on his "Rolling Exhibition," snapping pictures of peoples' reactions to him... and finds out along the way what it truly means to be human.
Boldly claiming a space in which people with disabilities can be seen and heard as they are--not as others perceive them--About Us captures the voices of a community that has for too long been stereotyped and misrepresented. Speaking not only to those with disabilities, but also to their families, coworkers and support networks, the authors in About Us offer intimate stories of how they navigate a world not built for them.
Since its 2016 debut, the popular New York Times' "Disability" column has transformed the national dialogue around disability. Now, echoing the refrain of the disability rights movement, "Nothing about us without us," this landmark collection gathers the most powerful essays from the series that speak to the fullness of human experience--stories about first romance, childhood shame and isolation, segregation, professional ambition, child-bearing and parenting, aging and beyond.
Reflecting on the fraught conversations around disability--from the friend who says "I don't think of you as disabled," to the father who scolds his child with attention differences, "Stop it stop it stop it what is wrong with you?"--the stories here reveal the range of responses, and the variety of consequences, to being labeled as "disabled" by the broader public.
Here, a writer recounts her path through medical school as a wheelchair user--forging a unique bridge between patients with disabilities and their physicians. An acclaimed artist with spina bifida discusses her art practice as one that invites us to "stretch ourselves toward a world where all bodies are exquisite." With these notes of triumph, these stories also offer honest portrayals of frustration over access to medical care, the burden of social stigma and the nearly constant need to self-advocate in the public realm.
In its final sections, About Us turns to the questions of love, family and joy to show how it is possible to revel in life as a person with disabilities. Subverting the pervasive belief that disability results in relentless suffering and isolation, a quadriplegic writer reveals how she rediscovered intimacy without touch, and a mother with a chronic illness shares what her condition has taught her young children.
With a foreword by Andrew Solomon and introductory comments by co-editors Peter Catapano and Rosemarie Garland-Thomson, About Us is a landmark publication of the disability movement for readers of all backgrounds, forms and abilities.Featuring Essays from: John Altmann - Todd Balf - Jennifer Bartlett - Emily Rapp Black - Sheila Black - Sasha Blair-Goldensohn - Cheri A. Blauwet - Molly McCully Brown - Joseph P. Carter - Peter Catapano - Randi Davenport - Luticha Doucette - Anne Finger - Joseph J. Fins - Shane Fistell - Paula M. Fitzgibbons - Kenny Fries - Rosemarie Garland-Thomson - Jenny Giering - Ona Gritz - Elizabeth Guffey - Jane Eaton Hamilton - Ariel Henle - Edward Hoagland - Alex Hubbard - Liz Jackson - Elizabeth Jameson - Cyndi Jones - Anne Kaier - Georgina Kleege - Rachel Kolb - Elliott Kukla - Catherine Kudlick - Emily Ladau - Laurie Clements Lambeth - Alaina Leary - Riva Lehrer - Gila Lyons - Ben Mattlin - Zack McDermott - Catherine Monahon - Jonathan Mooney - Susannah Nevison - Joanna Novak - Valerie Piro - Oliver Sacks - Katie Savin - Melissa Shang - Alice Sheppard - Daniel Simpson - Brad Snyder - Andrew Solomon - Rivers Solomon - Carol R. Steinberg - Jillian Weise - Abby L. Wilkerson - Alice Wong
This comprehensive guide to alternative and self-help care is directed to those who have MS, and to their families, friends, and helpers. Judy Graham's personal experiences with MS prompted her to explore various natural methods of treatment, leading to dramatic and lasting improvement in her own health. In her book, she has combined this first-hand knowledge with extensive, ongoing research.
Offers advice on exercise, posture, yoga, hyperbaric oxygen treatment, incontinence, relationships, sexuality, pregnancy, childbirth, mental attitude, and dealing with fatigue.